[关键词]
[摘要]
目的 对国内外儿童缓和医疗科普实践进行范围综述,为制订科普教育策略提供依据。 方法 系统检索4个中英文数据库及6个专业组织网站,检索时限为2013年1月1日至2025年9月20日,梳理并分析儿童缓和医疗科普实践的现状与特征。 结果 共纳入29篇文献,科普内容主要涵盖基本概念、症状护理、生死教育、沟通技巧、终末与心理护理及伦理7个方面;受众包括青少年、患儿家庭、原住民、志愿者及普通公众,其中以生命受限患儿家庭最常见。科普形式多样,公众反馈积极,干预后认知水平与死亡接纳度提高。 结论 未来应构建本土化科普框架,关注不同群体的多元需求,创新传播形式以提升效果。
[Key word]
[Abstract]
Objective To conduct a scoping review of public science popularization practices in pediatric palliative care (PPC) both domestically and internationally,providing a basis for formulating science popularization and education strategies.Methods A systematic search was performed in 4 Chinese and English databases and 6 professional organization websites,with the search period spanning from January 1,2013,to September 20,2025.The current status and characteristics of PPC public science popularization practices were collated and analyzed.Results A total of 29 articles were included.The content of science popularization mainly covered 7 aspects:basic concepts,symptom care,life-and-death education,communication skills,end-of-life and psychological care,and ethics.The target audiences included adolescents,families of pediatric patients,Indigenous peoples,volunteers,and the general public,among which families of children with life-limiting conditions were the most common.The forms of science popularization were diverse,and public feedback was positive,with improved cognitive levels and death acceptance after intervention.Conclusions In the future,a localized science popularization framework should be constructed,attention should be paid to the diverse needs of different groups,and communication forms should be innovated to enhance effectiveness.
[中图分类号]
R473.72
[基金项目]
美国中华医学基金会OC项目(#27-421)