[关键词]
[摘要]
目的 探讨癌症患儿症状困扰结局自我报告与父母报告的一致性现状及其影响因素,为优化临床症状管理提供参考。 方法 2022年12月至2023年7月,采用便利抽样法,选取广州市2所三级甲等医院住院治疗的8~18岁癌症患儿及其父母为研究对象,利用一般资料调查表、儿科症状筛查工具(自评版与父母版)、父母疾病进展恐惧量表和认知融合问卷进行调查。 结果 癌症患儿与父母各症状条目的组内相关系数为0.240~0.696,表明报告一致性介于较差至中等之间。广义线性模型分析显示,患儿疾病类型、确诊时间、移植状态及父母疾病进展恐惧水平是影响亲子报告一致性的因素(均P<0.05)。 结论 癌症患儿与父母在症状报告上存在差异。临床实践中需关注这些影响因素,提供个体化医疗信息支持,以提升亲子报告一致性,优化症状筛查及管理。
[Key word]
[Abstract]
Objective To explore the current status of consistency between self-report and parental-report of symptom distress outcomes in children with cancer and its influencing factors,so as to provide references for optimizing clinical symptom management.Methods From December 2022 to July 2023,children with cancer (aged 8~18 years) undergoing inpatient treatment at two tertiary A hospitals in Guangzhou,along with their parents,were recruited.General information questionnaire,symptom screening in pediatrics tool (children version and parental version),fear of progression (FoP) questionnaire-parent version,and cognitive fusion questionnaire were used for investigation. Results The intraclass correlation coefficient (ICC) of each symptom item between children with cancer and their parents ranged from 0.240 to 0.696,indicating that the reporting consistency was between poor and moderate.Generalized linear model analysis showed that the child’s disease type,time since diagnosis,transplantation status,and parental fear level of disease progression were factors influencing the parent-child reporting consistency (all P<0.05).Conclusions There are differences in symptom reporting between children with cancer and their parents.In clinical practice,attention should be paid to these influencing factors,and individualized medical information support should be provided to improve the consistency of parent-child reporting and optimize symptom screening and management.
[中图分类号]
R473.72
[基金项目]