目的 探讨孤独症谱系障碍（autism spectrum disorder，ASD）儿童父母的养育倦怠体验及其心理社会需求，为制订干预方案和完善社会支持体系提供依据。方法 采用描述性现象学方法，对16名ASD儿童的父母进行半结构式访谈，并运用Colaizzi 7步法分析所得资料。结果 ASD儿童父母养育倦怠的真实体验及其心理社会需求可归纳为4个主题，即ASD儿童发展、康复与养育的家庭困境，养育保护资源不足，心理求助资源匮乏，对未来的担忧与展望。结论 ASD儿童父母普遍存在养育倦怠问题；建议家庭、医疗机构、政府及社会多方协同合作，探索有效的心理健康干预模式，完善社会支持体系，以缓解养育倦怠对家庭的影响。

Objective To explore the parental burnout and psychosocial needs among parents of children with Autism Spectrum Disorder (ASD) so as provide a basis for formulating intervention plans and improving social support.Methods A descriptive phenomenological approach was employed,involving semi-structured interviews with 16 parents of children with ASD.Data were analyzed using Colaizzi’s seven-step method.Results The authentic experiences of parental burnout and their psychosocial needs were categorized into four themes:familial challenges in the development,rehabilitation,and caregiving of children with ASD;insufficient protective resources for caregiving;a lack of psychological support resources;and concerns and outlook regarding the future.Conclusions Parental burnout is widespread among parents of children with ASD.It is recommended that families,healthcare institutions,government agencies,and society collaborate to explore effective mental health intervention models and enhance social support systems to mitigate the impact of caregiver burnout on families.

R473.72

黑龙江省省自然基金项目（LH2021H023）；哈尔滨医科大学研究生科研创新项目（YJSCX2023-294HYD）