目的 深入探究癌症患儿主要照顾者经济毒性体验及其应对策略特征，为制订降低该群体经济毒性的干预措施提供参考依据。 方法 采用质性研究中的现象学研究方法，对11名癌症患儿主要照顾者进行半结构式深入访谈，并用 Colaizzi 7步分析法进行资料分析。 结果 经济毒性体验提炼出3个主题：多样化经济支出及经济来源中断、经济毒性导致的复杂情绪体验、医疗保险覆盖有限，申请救助困难；应对策略提炼出3个主题：缩减家庭支出、多途径寻求经济援助、利用空闲时间兼职，缓解经济压力。 结论 癌症患儿主要照顾者经历不同程度的经济毒性，在应对方面存在诸多困境，医务人员应加强对该群体的经济毒性风险筛查，注重完善其社会支持系统，并联合多部门协同建立经济毒性防范机制，以改善癌症患儿家庭的当前困境。

Objective To investigate the characteristics of economic toxicity experience and coping strategies of the main caregivers of children with cancer,so as to provide reference and basis for the construction of intervention measures to reduce the economic toxicity of this population.Methods The phenomenological research method of qualitative research was adopted.Semi-structured in-depth interviews were conducted with 11 primary caregivers of children with cancer,and the data were analyzed by Colaizzi’s 7-step analysis method.Results Three themes of economic toxicity experience were extracted: diversified economic expenditure and interruption of economic sources,the complex emotional experiences caused by financial toxicity,limited coverage of medical insurance,and difficulties in applying for assistance.The coping strategies were refined into three themes: reducing family expenditure,seeking financial assistance in multiple ways,and using spare time to work part-time to relieve economic pressure.Conclusions The main caregivers of children with cancer experience different degrees of economic toxicity and have many difficulties in coping with it.Medical staff should strengthen the risk screening of economic toxicity of caregivers of children with cancer,pay attention to improve their social support system,and join multi-departments to establish economic toxicity prevention mechanism,so as to improve the existing dilemma of families of children with cancer.

R473.73

2022年度安徽省高校人文社会科学研究项目（2022AH040091）