[关键词]
[摘要]
目的 系统评价生命限制性疾病(life-limiting illness,LLI)患儿父母参与儿科预立医疗照护计划(pediatric advance care planning,pACP)的体验,为pACP的实践提供参考。方法 检索Pubmed、Embase、Web of Science、Cochrane Library、CINAHL、SinoMed、CNKI、维普、万方等数据库中LLI患儿父母参与pACP的相关质性研究,检索时限为建库至2024年4月,采用汇集性整合归纳结果。结果 共纳入12篇文献,提炼27个主题,归纳为8个类别,3个整合结果:LLI患儿父母面对pACP的行为表现;LLI患儿父母感知pACP的有益价值;LLI患儿父母参与pACP的障碍壁垒。结论 关注患儿意愿、满足父母决策需求、加强儿科安宁疗护和pACP教育,是促进pACP实施的重要内容。
[Key word]
[Abstract]
Objective To systematically evaluate the experience of parents of children with life-limiting illness (LLI) on pediatric advance care planning (pACP),and to provide reference for the effective practice of pACP.Methods Pubmed,Embase,Web of Science,Cochrane Library,CINAHL,SinoMed,CNKI,VIP and WanFang were searched for qualitative studies on the pACP experience of parents of children with LLI from the inception to April 2024.The results were summarized by using pooled integration.Results A total of 12 literatures were included and 27 themes were extracted and classified into 8 categories and 3 integrated results: behavioral performance,perceived benefits,perceived barriers of parents of children with LLI in the face of pACP.Conclusions Paying attention to the children’s willingness,meeting the decision-making needs of parents,and strengthening pediatric hospice care and pACP education are important components of promoting the implementation of pACP.
[中图分类号]
R473
[基金项目]
山东省自然科学基金(ZR2021MG041)