目的 了解慢性肾脏病（chronic kidney disease,CKD）患者的患病体验，为构建个性化干预提供依据。方法 采用现象学研究法，以目的抽样结合滚雪球抽样方法选取2021年10月至2022年7月河南省某三级甲等医院肾内科18例慢性肾脏病患者进行半结构式深度访谈，通过框架分析法和ATLAS.TI软件进行资料分析。结果 可归纳为5个主题：疾病确诊经历、症状困扰与日常生活改变、经济负担沉重、社会行为退缩和社交隔离和多样化支持需求。结论 CKD患者在疾病过程中存在多维度问题和需求，医护人员应重视完善基层防治、推进健康科普，探索合适的心理干预策略以及运用远程技术进行CKD患者的延续性支持，提升其生活质量。

Objective To understand the experience of patients with chronic kidney disease(CKD) and provide basis for developing personalized intervention.Methods A phenomenological study was conducted and a purposive combined with the snowball sampling method used to select 18 patients with CKD in the Department of Nephrology of a tertiary A hospital in Henan Province from October 2021 to July 2022 for semi-structured in-depth interviews.Data were analyzed by the framework analysis method and ATLAS.TI software.Results 5 themes were extracted:experience of disease diagnosis,symptom distress and changes in daily life,heavy financial burden,social behavioral withdrawal and social isolation,and needs for diverse support.Conclusions Patients with CKD have multidimensional problems and needs in the disease process.Healthcare professionals should focus on improving primary prevention and treatment,promoting health education,exploring appropriate psychological intervention strategies,and using telemedicine for continued care on CKD patients,so as to improve their quality of life.

R473.5

国家自然科学基金青年科学基金项目（72204060）；广东省联合基金青年项目（2022A1515110351）