目的 探讨肺移植患者居家肺康复自我管理行为决策体验。 方法 采用目的抽样对某三级甲等医院复诊的16名肺移植患者进行半结构式访谈，采用解释现象学分析法进行资料分析。结果 共提炼出7个亚主题，归纳为3个主题，包括:行为态度、身心感知牵动决策态度；主观规范，社会因素驱动决策信念；知觉行为控制，自我感知左右决策意向。结论 肺移植患者居家健康管理可通过强化行为决策心理体验的正向反馈、完善社会支持网络下患者主动参与决策机制，以及探索构建肺移植患者居家健康管理社区扶助模式，改善其居家肺康复自我管理行为。

Objective To explore the experiences of decision-making of home-based pulmonary rehabilitation self-management behaviors in lung transplant patients. Methods The purposive sampling method was used to conduct semi-structured interviews with 16 lung transplant patients who attended follow-up visits in a tertiary A hospital.Data were analyzed using interpretative phenomenological analysis.Results A total of 3 themes including 7 subthemes were identified,namely attitudes(physical and mental perceptions influencing decision-making attitudes),subject norms (social factors drive decision-making beliefs) and perceived behavior control (self-perception shaping decision-making intentions).Conclusions Home-based health management for lung transplant patients can be improved by strengthening the positive feedback of the psychological experience of behavioral decision-making,improving the mechanism of patients’ active participation in decision-making under the social support network,and exploring the construction of a community support model for home health management of lung transplant patients,thereby to improve their self-management behavior in home-based pulmonary rehabilitation.

R473.56

无锡市医学创新团队（CXTD2021021）