目的 探讨孤独症患儿照护者不同阶段疾病感知特征，为制订针对性的干预措施提供依据。方法 采用现象学研究方法，对13例孤独症患儿照护者进行半结构式深度访谈，运用Colaizzi 7 步分析法进行资料分析、提炼主题。结果 孤独症患儿照护者疾病感知呈现阶段性特征，分为疾病确诊前、疾病诊断阶段、疾病干预3个阶段。结论 孤独症患儿照护者不同阶段疾病感知具有动态演变的特征，医护人员应知晓其阶段性特点，制订相应的支持方案，提升其照护能力。

Objective To explore the characteristics of disease perception at different stages among caregivers of children with autism.Methods Using phenomenological research，a semi-structured in-depth interview was conducted on 13 caregivers of children with autism.The data was analyzed and themes were extracted using the Colaizzi 7-step analysis method.Results Caregivers of children with autism showed phased characteristics in disease perception before diagnosis stage,the diagnosis being confirmed stage,and the intervention stage.Conclusions Caregivers of children with autism have dynamic evolving characteristics in disease perception at different stages.Medical staff should be aware of their phased characteristics，develop corresponding support plans，and improve their capabilities of giving care.

R473.2